The ups and downs of parenting an Aspie kid. The place where the good meets the bad and all the in between. We'll laugh together and cry together, but either way, this is as real as it gets. To get more visit- https://www.facebook.com/ContrarytoCayden
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Monday, July 30, 2012
Tires and Chocolate
At present he is crying because he just knows that Ryker is going to get to eat ALL of that parade candy. Honestly, I just threw candy away from 2 Halloween's ago that I found in that nifty little cupboard above the fridge. I know it's gross, judge in silence haha. I just don't get it. He makes it seem as if I'm so one sided and show so much favoritism. Bleh. C has been talking to himself for 23 minutes about how mean I am and how I broke a promise. Actually MR. literal, I never promised anything, I distinctly remember saying, "since you already had some you don't need this".
Top it off, and little Ry has been an emotional mess for weeks. All he does is cry because everyone is hurting his feelings (ie. "get off your dresser Ryker". "I know! you don't have to be so ruuuude!" and here comes the waterfall of tears.).
We are getting ready to go on vacation for 5 days. I'm already dreading it. I don't know if C's issues are stemming from the anxiety of the trip/ change. I'm sure once we are there he will mellow out... hopefully. But when we get home, I really don't want to have to go through this again. Just in time to do it all over again in a few weeks when it's time to go back to school... Then time to go to day care for the first time. Then.. and then... and then. So much for that wonderful fingernail polishing quiet break I had. It's back to real life, real tears, and an upset tummy from too much chocolate.
That is all.
-Nikki
Friday, July 27, 2012
Peace and Polish.
I did however, go down and fill out the paperwork and pay the registration fee for a day care center that I mentioned a while back, so that's exciting! I can do what I need to for school and not have this hanging over my head. I think next week, or maybe the week after, I will take the boys down there to check it out and be able to put faces with names. Hopefully this will ease the transition for C.
We are heading out for a few days of camping and crabbing, the boys are taking their fishing poles and bikes and Ry is elated to go to the beach. Fingers and toes(freshly polished ones at that) crossed the trip goes smoothly.
Not much else to report here, just watching trashy tv shows and doing my nails today.... This is what I'm doing..... With no interruptions.
As much as I miss them, this sure is a welcomed break! Hope every one is staying cool and hydrated!
-Nikki
Friday, July 20, 2012
Surprise rafting and new beds.
Let me start by saying I'm blogging from my phone, so there's bound to be some typos and really awesome autocorrects.
After a few days of help from my mother in law, a break to go to the doctor and a hair cut and a pep talk while kid free, I feel like a new woman! Funny how something so small can make you feel so great. Yesterday I gave C his MP3 player back after he got it taken away from him because it was a major impairment on his listening skills. Earlier in the day he was a mess. Yelling at me and Ry for previous events. He was sitting at the table and I pulled the MP3 player out and set it in front of him. My M.I.L. whispered to him, " you should probably tell her thank you for giving it back even though you weren't very nice ". He walks over to me very calmly and says " thank mom for giving it back..... even though I was a jerk ". I asked him if he knew why he got it back. His answer was no. I explained to him that I gave it back because me having it had nothing to do with his behavior today. What happened yesterday has nothing to do with today. He looked at me confused for a minute. Then without saying a word he threw his arms around me and gave me a giant hug. "Thanks mom " he said softly. I had to fight back tears.
Then on Saturday we had a surprise birthday party -rafting trip for a friend of ours. I wasn't sure how the boys would do on a 3-4 hour ride down the river. They did surprisingly well. Reports were it was super fun because they got to use squirt guns ( the giant dipsticks) the whole time. About half way down Ry requested to go back because he wanted to be done. But, we got to a stopping point had some snacks and he got in the raft with bus other 2 favorite adults. At about 3 hours in I could see that C had reached his limit. He was no longer capable of sitting still and was obsessing over getting something in another raft. (We had 2 rafts that towed another 2 rafts with older kids and coolers.) When we finally got done we had an amazing bbq where everyone proceeded to eat too much. It was fun.... a lot of fun.
C had a hard time going to bed. We started at 8:00 and struggled with him until 9:45 when we simply shut the door. I think he even slept through the night. I know I did. I woke up in the sane position I fell asleep in. Lol.
On Friday we went to Costco and bought the boys their first set of new mattresses . They had twin size pillow top Sealy's for $119. The boys were so excited. .... until we got home. C was making his new bed and went into full meltdown mode. It sounded like something off the exorsist movies coming from his bedroom. After about.5 minutes of screaming and hyperventalating he comes out if his room with blood shot eyes and a Rosy face and says he can't stand the new mattress. The old ones have handles in the mattress so it is easy to move. The new ones don't. I never would have imagined that a change as small and welcomed as a new mattress would bring so much turmoil. I showed him how to move it without handles and he grumbled for a bit, but he eventually got done and seemed pleased at bed time.
I find its easier to see things that are out if his control than I used too. A year ago I might have disciplined him for having a tantrum over a new bed. Can you imagine what it must feel like to always feel so anxious and over stimulated?
C seems to be doing better today after what seemed to be a good nights rest for everyone. Hes less confrontational and whiny. So that's always a plus.
Fingers crossed for a peaceful evening,
Nikki
Wednesday, July 18, 2012
Insight and headaches.
It's hard feeling like no one else understands, even your own family. It really does make you feel alone. So I laid in bed this morning, with that thought rolling around in my head. If I felt so helpless, so frustrated, so minimized by others, how the hell does C feel? Although most of his struggles are internal. When you think something isn't bothering him, you're wrong. Give it about 5 days and then he will have a meltdown but you won't know why... You have to go all super sleuth to find out. But if I feel so horrible on the inside and out, he's a kid, I don't know that I want to know how he feels. Or is it even something that he can even process? So many questions, no one to answer them.
I'm headed to the library to pick up a book I've been dying to read and they finally shipped it here for me. I will still be waiting for a phone call from a lady who does the Aspie support group and from 2 doctors. I did get a referral to a therapist in Medford that specializes in Aspergers, so I'm waiting on that call as well. I'm doing my best, but wish I wasn't the only one fighting so hard.
Hoping for some insight, Tylenol to finally kick in, and less fighting amongst the boys today (although it's all I hear at the moment...).
-Nikki
Tuesday, July 17, 2012
Defeat is not an option...
I've had a headache for 5 days straight and I'm sure that's not helping things. I envy those who have family close enough to have a break. I just need a little time, to regather my thoughts and recharge my "emotional tank" so to speak, occasionally. For someone who needs things to be so ordered and structured, C sure does know how to shake things up in this house. I've been watching him the last 2 days become condescending to Ry. He's been complaining and having a hissy fit because he has to do things and wants help. But then when Ry helps C screams at him for not doing it right. Ry cries and C is still pissed that he's not getting help. I'm not sure how long I stay out of it. Honestly, if you want help, don't yell at the person who is helping you. If you don't like the way they are doing it, then do it yourself. There is no reasoning with him, his way is the right way. Big spoons can't go with little spoons, white bowls can't be stacked with brown bowls, BUT if I make Ry stop helping C thinks I'm the worlds worst mom and I'm unfair and mean, if I let Ry continue to help Ry things I'm mean and C refuses to be kind. I can't win. I try so hard to make things fair and even for him. But to what extent?
I've been fighting for him to get help for 7 years now. In that time I haven't stopped to ask for help for me. Now I'm screaming for it and don't know where to turn. So if anyone has any good ideas, I'm open for it, but please, if you do not understand Aspergers or Autism, do not pass judgments on my parenting or my kid. That's not what I'm looking for.
Giving anyone who reads today a giant hug, mostly because I need it,
-Nikki
Sunday, July 15, 2012
Accountability and Understanding
I wish there was a manual for parenting an Aspie. And I suppose more than parenting, a guide to understanding in the moment, not just in hindsight. I've talked about it before, but managing yourself really is harder than trying to manage their behavior. Being accountable for yourself, for lack of a better term, sucks. I find I spend so much time trying to "train" my kids to be respectful and responsible, that it's possible I forgot to practice it myself.
On a brighter note, we had some friends from out of town stay with us last night. Ry went to my mom's house so it was just C and 2 other kids (they have known each other their entire lives). There was no fighting, no whining. They played together the entire time up until about 10:30 this morning when they left. I think it was good for him, he seems much more relaxed today. All week I've watched his body get more and more tense. By Friday his eyes were sunken in and darty, his shoulders were rolled up and he couldn't sit still. A little break from his brother and a few friends who know how to follow the rules of and share similar interests in games.
I'm off to buy stock in Adidas, (haha, not really but it seems like it) because they are the only shoes he will wear. He won't wear sandals or flip flops, hates wearing socks, and cries when he can't wear his favorite shoes. The peanut gallery can hold their comments about not letting your child be "picky". Ask either one of my kids and they will tell you our motto is "you get what you get, and you don't throw a fit". Until you have been in my "shoes" (pun totally intended) you can't judge. There are certain things that have to be consistent where Asperger's is involved. And if shoes is one of them, then so be it.
Thursday, July 12, 2012
Networking and Raisin Bran
That evening we made a trip over to C's teacher's house (from last year) to deliver a little craft project we had been working on for her. She showed such patience and caring throughout the year and still during the Summer time when she should be vacationing, that we thought we'd do something nice for her. She has these 3 amazingly well behaved dogs, one of them being a St. Bernard, the boys LOVE big dogs. To top it off, her husband is a fireman.... It was like Ryker stepped into his dreams. He got to look at dog books, hear stories of dog agility training, watch fire fighting videos, check out the fire truck, get some goodies, see a police officer stop by to say hi, and by the time they got in the car they were ready for bed so they could crack open their glow sticks. LOL. Best couple of hours we've spent all summer and what we desperately needed after such a weird morning.
Then this morning I gave a lady a call that I was referred to from some of the staff at C's school. She has an ASD support group, oh, did I mention she has a day care center AND it's affordable also? Yep, the stars aligned and birds sang. The more I talked to her the more giddy I became. She has been through such similar things ( she has an Aspie in the family too). Right down to doing all the research yourself because you can't get anyone to help you and you don't feel like there's anyone who will ever understand your frustrations and struggles, and even the victories that no one else gets are a big deal. I'm more excited than anyone will ever know to meet people that will understand my life and how Asperger's effects the entire family. When I told C that there was a chance he could meet other kids with Asperger's he just smirked and said, "oh, they are special needs like me... cool, they won't be jerks". WOW. First and foremost, I corrected him on his choice of words, he's 9 not 90 and doesn't need to call anyone a jerk. But mostly, it solidified what I had been trying to tell everyone for years. Just because he doesn't show externally how hurt he is by the treatment he gets from other kids, doesn't mean he's not affected. There's also that term, "special needs" that I think has to go. It's good to understand the term, but I'm afraid that will come back and be used as a crutch.
I'll be talking to her again soon, but in the meantime I feel hopeful for both of us building new networks and relationships with people who have to structure their lives like ours.
At the moment I'm being reprimanded for turning off the tv and throwing away something of C's without telling him.... Only I didn't throw anything away. And I only turned the tv off after he refused to brush his teeth and threw his brothers things down because he wanted to play where Ry was. This whole managing my own behavior is much harder than you would think. I want so badly to lecture him into seeing things my way... Problem is, that will NEVER happen, not in this lifetime anyways. One of the things about being an Aspie means that whatever they believe, you can't change their minds. If they believe it, it IS true.
Along with managing my own behavior I've been trying to keep out of every disagreement they boys have. As my ears are ringing from the shrieks and screams I wonder how much longer I can hold out.
I took a 20 minute time out for myself, lol. Contemplating the importance of earplugs and closets. I figured they'd find me anyways so I grabbed my book and closed the bathroom door and pretended to be "busy". Turns out they respect your "poop time" as Ry so lovingly said. And that's where the fighting stopped. Wonder how many times I can make this work? lol I might have to pretend to eat a lot of Raisin Bran so they don't get suspicious.
I'm off to make dinner,
Nikki
Wednesday, July 11, 2012
Black and white minded don't really like black and white things....
After an hour long phone conversation with an old friend of mine last night I went to bed later than usual. I turned the TV on to try and unwind a bit and what did I find? Alf. I couldn't resist. After Alf, was Wonder Years. I was in 80's child euphoria!
Watching these shows got me to thinking about the other day, I was watching The Adams Family.
C comes to sit down and says," wait, is this whole thing in black and white?". Yep, it sure is. Ry loved it, but C didn't. I found it funny that someone who see's the world in black and white doesn't really care for things that are actually black and white, they are just not interesting.
Earlier that evening after my husband got home from work, he sat down to do a writing assignment ( he also goes to college and works full time *sooo proud of him) and the topic was these millions of ADHD diagnoses that seem to be all the rave these days. I'm very opinionated about an ADHD/ADD diagnosis. My thoughts are this: remove processed foods and eat foods that are free of dyes and other chemicals and preservatives, remove/limit overstimulating activities like too much tv and video games, get the kids up and play. I'd be willing to be that at least half the kids diagnosed would see symptoms fade.But unfortunately there are a lot of parents who jump for meds instead of testing first. Did you know that preservatives and dyes are linked to causing hyperactivity in children?
So all these thoughts are swirling around in my head like they were dancing the freaking cha cha at midnight and here's the result of my thinking:
- when and why did tv become so offensive? When did it become ok for a cartoon to call someone an idiot? ( Sponge Bob, which my kids aren't allowed to watch)
- when was the first time they were allowed to say "b!t@$" on day time television and was it a total shock to everyone?
- I like guilty pleasure tv as much as the next guy, probably even more... I LOVE tv.
- I'm glad I don't let them watch too much tv.
- They are buttholes when they watch too much tv.
- I wonder if anyone else is watching Alf.
- I'm never going to fall asleep.
- Ohh my goooodness, Ry snores like a wind tunnel...
- Danny snores like a mac truck's jake brake.
- I want sleep.
- I want pie.
- I wan......
I wonder what would happen if I only let the kids watch shows from 1990 and earlier....
Ry is awake and concerned that he woke up too late and didn't get a hug and a kiss from his dad before he left for work. And this turns into him being concerned about how Cayden will feel when he wakes up and realizes he's missed it too. At this very moment Ry is putting the silverware away "so Cayden doesn't have much to do when he wakes up" to try and ease up the morning for him. It's not often, but I am seeing from time to time that they are very considerate of each others feelings and it's almost like C is learning some of this compassion from his little brother. It's funny to watch the roles be reversed.
This is my boys at my sisters wedding a few weeks ago... It's a beautiful moment. |
Tuesday, July 10, 2012
Silence... at least til breakfast....
C wasn't feeling too well yesterday and as bad as it may sound, I enjoyed yesterday. We were lazy for the whole day, which NEVER happens in my world. There were no arguments amongst the boys, no one broke rules so C didn't have any meltdowns and Ry was contently playing with legos ALL day. Bed time rolls around and it's the same as every other night, brush teeth, go pee, get drink, hugs and kisses and get your butts to bed by 8:10. Since C wasn't feeling well (he has a 103.2 fever) I let him lay on the couch so I could keep an eye on him. Ry was in bed and all was quiet for a while... But then, my husband, myself, and C started talking, and giggling a bit. Next thing you know we hear Ry " PPLEEEAASSEEE BEEE QUIEEETTT!!". " Your talking is keeping me awaaaaaakeee!!!". Now you can think what you want, but this is hilarious. My kids don't talk rude to people like that, and it was more an annoyed plea for silence than flat out rudeness. We stop talking and press play on the DVR. " My...., Head..... Is.... Going.... To..... Explode.... In.... ONE MINUTE!!!! Turn it DOOOOWNNNN-UH". We can barely contain ourselves, but pull it together just in case, you never know. lol
Then comes morning. I wake up, before 6 a.m., to arguing. At least we know C is feeling better. Apparently my payback to keeping Ry awake was for him to get up, play on my phone, hide it, eat 2 yogurts and something else ( I honestly can't remember because I wasn't fully awake yet). Which turned into a "no I didn't", "yes you did" "nuh-uh" "uh-uh" fight, that continues as I type at 7:31. I made them both go back to bed where they are so mad at me that they are "NOT TALKING TO YOU!!!" (meaning me) all day....... Well folks, this just might shape up to be a great day. Peace and quiet. I better soak it all in, because I have a feeling all day really means until breakfast time, they know who feeds them. ;)